Woke up just before my 7:55am alarm went off this morning, which is rare. So I watched some morning news and waited for my breakfast to arrive at my door. Unfortunately the breakfast was disappointing, so I’ll make my way to the restaurant for breakfast tomorrow, even though I’m phobic about buffet food. I can have as much as I want when it’s buffet – I had 4 mini croissants and a big bowl of plain yoghurt – no granola as they’d run out and you can’t eat plain yoghurt on its own, it’s hideous!
So after breakfast it was time for a ‘Your Move’ session which was a basic relaxation/stretch class – lasted about 15 minutes then I went onto my first Physiotherapy session. The Physio was lovely, and really listened to my issues and goals. She sorted out some things I can do to improve my back pain and ward off so many muscle spasms. Then she said I was strong and had a great sense of body awareness – so my aim to get pilates and yoga back into my routine regularly is definitely doable, which is great.
Then we moved onto Occupational Therapy and we worked out some areas we could improve; longevity of shopping trips, my ability to do more chores around the house and work on my hands and grip.
Then came Psychology, which was weird. I got upset because of the vulnerability I felt talking to a complete stranger and it was an odd sensation. I thought it would be more to do with how I feel about living with a chronic illness, but it was more to do with being bullied as a teenager and how I see myself now. Which is great, but not what I’d expected to be delving into (especially with such a limited time frame… I’m a complicated woman and 3 sessions of psychology ain’t gonna do much!).
After lunch (which is cleverly made so that none of it can be squirreled away to our rooms for later – it was all salad, ham, chips and pasta) we had a session about the physiology of pain. I found this particularly boring, mostly because having been diagnosed with EDS for over 10 years, I know enough about pain to not need a lesson about it. I’ve read up about pain plenty of times and it just felt like they were teaching a granny to suck eggs, in a way.
I think that’s what Andy (the lead Psychologist on the programme) meant about my being a breath of fresh air in terms of being a chronic illness ‘sufferer’ – I don’t ‘suffer’ with anything; I have a chronic illness, I am not my chronic illness. So the sessions here seem to be catered to the more ‘Fibro minded’ people who tend to let their pain take over and therefore need to be taught how to change their relationship with pain. I am confident in myself and my illness to not feel like I have an unhealthy relationship with my chronic illness or pain.
Unfortunately this afternoon the jacuzzi wasn’t working so we were left with either swimming in the COLD (we have connective tissue disorders damnit, we need warm water!!!) pool or using the sauna – neither of which we felt like doing so we sat and relaxed for a bit before the children piled in the pool.
Anyway, I’m utterly knackered so I’m going to leave it there. My fella’s coming to visit me in the hotel tonight, so we’re eating dinner in the restaurant here. I can’t wait to see him, I feel like I’m a million miles away from him! (In essence he’s more like 40 miles away!)