On 8th December 2017 I attended a private practice in my hometown, for an adult autism assessment and I thought I’d share with you how it went and what happened.
Firstly, I shall briefly explain how to get an NHS assessment if you think you may be on the Autistic Spectrum. The first port of call is your General Practitioner (GP). I spoke to my GP about my concerns and he asked me to go home, write down the things about myself that make me think I may be autistic, give it to him and he will then decide if what I’ve written warrants a referral for a diagnostic assessment.
Unfortunately for me and others in my area, our NHS autism clinic has closed, so referrals are now being sent to a local private clinic instead and they take on NHS patients through a GP referral. I’m not sure if that’s a nationwide issue (I’d guess that it may well be) so always ask your GP first – I had to signpost my GP to a referral service myself and find one that would take NHS referrals.
Obviously, my GP thought I made a good enough case for myself, because the next thing I know, I get a phonecall from a private clinic asking me if I would like to book my ASD assessment. A few days later I get 3 emails containing self-assessment questionnaires to fill in online. I wrote quite a lot of detail in those, as I am much better at writing about myself than talking about myself in person – clearly!
The 8th December came and my anxiety was going nuts. I had terrible stomach symptoms (my tummy tells me I’m anxious before I realise how I’m feeling) and sleeping was difficult the night before. I get to my appointment and the first thing I notice is how horribly bright and colourful the waiting room was. Hideous bright lights and yellow cushions. The sofa was pretty cool in that it was a button back chesterfield with dark coloured patchwork fabric on it. That bit, I did like!
So, we go upstairs with my Psychologist and I take my Mum in with me – after all, she knows me better than I know myself (and can remember what I was like when I was a toddler) which is apparently very helpful during an adult diagnosis, as ASD symptoms are easier to identify in children. I think the first part of the assessment was the Autism Diagnostic Interview (ADIR) and My Mum told some embarrassing stories about me – like sitting in front of the tv as a baby, listening to classical music – crying!
Once we’d talked about my childhood, my Mum was asked to leave and we then started on the ADOS-2 (Autism Diagnostic Observation Schedule) and what I’d call ‘childrens tests’ – things like reading a book out loud, that didn’t have any words in it – so describing the story of pictures (which I found incredibly difficult!) and then I had to make up a story featuring random items from a plastic bag of toys and random things. I passed on that one as I couldn’t find a link to any of the items and couldn’t create a story – I have an absolutely useless imagination!!!
The Psychologist told me that there were two other assessments she could do during my appointment; a personality test and a cognitive test. But, as she’d already learned about me doing a degree, she agreed that I have no cognitive issues and I don’t have a personality disorder, so we skipped both of those tests. We talked a lot about my childhood and my teen years and not much about my life as an adult – although I thought it was pertinent to explain how I have not had a ‘proper job’ since I was made redundant from working part time with my Mum for a charity in 2010 and that I spend most of my time reading, researching and looking for things on ebay (and obsessively buying antiques for our Victorian home!)
The appointment was over before I knew it. The psychologist walked me downstairs and told me I’d get an appointment for the results of the assessment and it should last around an hour.
My results appointment is on 17th January 2018 – so, I have a SIX WEEK WAIT to find out if I’m on the Autistic Spectrum or not. Suffice to say, this will be the most tense 6 weeks. I really wish my appointment was sooner.. I feel like I’m in limbo right now. I’m watching lots of videos on Youtube of people who’ve had adult diagnoses and I just want to know if that may be me.
Of course, I will be writing up the results of my Adult Autism Assessment and am also considering starting a Youtube channel of my own to help raise awareness of ‘being different’ (I hate that term, but I AM different… I just don’t know HOW!)
If you need any information about Autism then have a look at the National Autistic Society website – it’s been a great help to me so far.