I was diagnosed with a genetic connective tissue disorder called Ehlers-Danlos Syndrome Type III (known as Hypermobility type) at the age of 19 after years of hospital visits, pain and injuries.
I’m now a sort of expert when it comes to my condition and it’s mostly self managed (because there’s very little that can be done!)
My mobility is limited and I use several ‘disability aids’ to help me in every day life – some, you won’t see as they’re in my shoes or underneath my clothing (heat pads for pain relief).
I will hopefully be attending the renowned residential Rehabilitation Programme at the Royal National Orthopaedic Hospital some time this year so will be writing about that as it happens.
Within this blog I will be writing about my experiences of having a chronic and hidden illness, documenting the struggles and triumphs I will experience in life, with the hope that I will either educate or inspire.
There’s more to disability than a wheelchair…