Autism Diagnosis

I AM Autistic! (duh!)

On 8th December 2017 I sat down in a psychologist’s office and underwent a series of assessments/tests that are used to diagnose Autism Spectrum Disorders in adults. I discussed my childhood, my teen years and my struggles in life both as a young person and as an adult. My Mum also filled out some forms about me and also answered some questions from the Psychologist about me as a toddler – it’s easier to diagnose ASD if they have a decent amount of history from around the age of 4, so it was really important that my Mum attended with me. I left the appointment and Christmas and New Year came and went….

Six agonising weeks passed and finally my result appointment was here.

I sat down in my psychologist’s office once again, and nervously grasping at my coffee, I waited with bated breath. She asked me what I was expecting or hoping for and I answered honestly, while looking at my feet, “I’m hoping for an ASD diagnosis”.

A slow pause and she starts reading out parts of her report (that she had yet to finish) and listed how many points I scored for certain questions and how that measured up to a diagnosis…….

It turns out that on the ADOS 2 assessment, I scored 9. The threshold for an ASD diagnosis is 7, so I can say that I am officially diagnosed as being on the Autism Spectrum and I have Autism Spectrum Disorder. I am not ‘neuro-typical’ – not that that comes as a huge surprise to anyone that knows me, personally!

Part of the report says  “she did not ask for information during the ADOS 2 in a social manner; that is, she did not inquire about nor express interest in the examiner’s thoughts, feelings or experiences, even when presented with a leading statement to investigate further.”  – I feel particularly embarrassed about this part of the report, as it seems so obvious to me looking back. I remember the discussion and kick myself that I didn’t ask her any questions about herself – but then, I also have to remind myself that this isn’t my fault. I am autistic and part of that means that I do not consider other people’s feelings or thoughts instinctively, like neuro-typical people do. It is something I can now understand and accept.

Being diagnosed with Autism wasn’t a surprise to me, but it did take me a week or so to let it sink in – I wasn’t ‘normal’ and after 31 years, it’s a shock. It did though, validate my feelings that I was innately different to the general public – an inkling I’d had since I was a young teen.

However, I now have to navigate the world knowing that my brain isn’t developed in the same way as most people. This means I’m now constantly questioning myself and trying to figure out who I am. Questions like ‘is this my autism, or is this my personal taste?’ and things like that. How much of what I do and say is down to being autistic? You can see where I’m going with this…. it has opened up a can of worms in a sense.

In contrast, it has also given me a sense of relief. Relief that there is now a clinical, medical reason for why I have found life more difficult, more stressful and less enjoyable than most people. I’ve struggled socially since I can remember and now I know why; it wasn’t my fault that I couldn’t keep friendships going through school. It wasn’t my fault that I was in my early 20s before I had a boyfriend and lost my virginity. Social skills don’t come naturally to me and now I understand why. I understand why I’ve struggled with Social Anxiety Syndrome since my teens; it turns out that Ehlers-Danlos Syndrome and ASD are often seen together – anxiety disorders are also co-morbid conditions often found alongside EDS and ASD – and I have all 3!!!

So that explains it. I’m autistic. I am autistic. And that’s okay. I guess that also makes me somewhat of a genius in a way… I’ll get onto that in another blog post!

Ta ta for now xx

 

 

 

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Am I Autistic?

This is the question I have been pondering for quite some time now. I wouldn’t be surprised if I am found to be on the Autistic Spectrum – not surprised one little bit.

You see, I’ve always been ‘different’ – at school, I marched to the beat of my own drum, was known for being an outspoken and opinionated person and my nicknames were ‘Witchcraft’ and ‘greebo’. From around the age of 13 I found my dark side and fell in love of Black Sabbath, Wicca and purple lipstick. I had an altar and I cast spells. All of this, of course, meant that I was constantly bullied.

However, none of that made any difference to who I am inside. I’m me. I’m different and always will be. I’m 31 now, and apart from having grown into my looks (and lost 3 stone in the process) I’m as weird or as ‘eccentric’ as I was when I was a young teenager. I’m normally found wearing black from head to toe, which I gather isn’t exactly ‘normal’.

I’ve dabbled in the vintage world, and for a good few years I was obsessed with the 1940s and 1950s and even started my own business selling vintage clothing and modelled as a pinup. Then, I got bored of everyone looking the same and I put my vintage wardrobe into boxes in the loft, where it’ll stay until I fancy a change again.

My biggest obsession now is my Victorian home that I share with my incredibly patient and laid back partner. I honestly don’t know how he copes with me and my quirks but 3 years on, we’re still deeply in love. Everything in our home is Victorian, because I like integrity.

Apart from my obsessions, I also struggle to empathise with people. I often put my foot in it and offend people – though with age, I’m definitely learning how to soften it a little. Don’t get me wrong, I’m still doing it, just not as often.

I also don’t like people, generally. I don’t know if this is because I’m a natural introvert, or because I’m autistic, but people annoy me. The herd mentality of most people irritates me and I just want to shake people and say ‘wake the fuck up’ or ‘shut the fuck up’ when you hear them talk about inane things like football or X Factor. I don’t want to talk small talk – I absolutely hate it. It makes me uncomfortable, so I tend to avoid people I know if I see them. It’s not personal, it’s just my own issue I’ve always had.

Facebook has been an interesting journey – especially when you look up people from school to find that they’re all still friends with each other, and most of them married each other too. I think to myself how odd that is – that they all left, went to university (I tried that twice, it wasn’t for me!) and then came back ‘home’ and married their school friends. I find that odd, and frightening. I am only friends with 2-3 people from school and they’re all guys. Most of the girls were complete bitches. I don’t like women very much, men are easier.

A few things about me:

I don’t like authority. I don’t like uniforms. I don’t like being stuck in an office from 9-5 every day and living for the weekend. I don’t like loud music playing in shops. I don’t like busy shopping centres. I like being indoors, I like being quiet. I like the company of animals. I like to read. I like routine. I don’t like busy pubs – I won’t walk in first. I don’t like plans to change, unless they’re being cancelled altogether. I don’t like big groups of people. Festivals are full of sheeple. I like the vikings. I like strong, independent women. I like feminism. I’m a conservative because I like money, but a socialist because I don’t have any. I’m a walking contradiction. I’m confident, but shy. I’m egotistical. I’m a grammar nazi. I’m a super-recogniser. I have watched the same movies over and over and know all their scripts. My best friends are Carrie, Samantha, Charlotte and Miranda, Rory and Lorelai Gilmore and Lagartha Lothbrook. Fictional people are more interesting and relatable.

So, I’ve decided that I want to know, for sure, if all this (and plenty more besides) makes me autistic. There is ADHD in my family and my Dad is incredibly ‘quirky’ himself. I’ll eat my hat if I don’t end up diagnosed with something unusual.

I’ll be writing about my experience of the Autism Diagnostic Assessment as/when it comes around – it’s booked for 8th December, so it won’t be too long. If you’re interested in following my home renovation journey or my autism journey, please hit the ‘follow’ button and you’ll be emailed whenever I publish a blog post ❤